Friday, May 16, 2025

Endoscopy Results

 Endoscopy Results

 

    My results made it to my MyChart last week but I didn't want to look at them. Often when I have a scan done or something like this, I go to read the results but they are hard to understand and often say things that I take to mean as significantly bad, but are actually fine. My mom really wanted me to read the results and I figured if they hadn't called me, the results must not be that bad. So on Saturday, I read the results.  There were four different entries in my MyChart and I read them all with not much clarity. In one finding it said something about a Bethesda category III and something else was atypical. There was no definitive answer. So I called the office, and asked if someone could get back to me about the results. They told me it would be 24-48 hours before someone would contact me. After a day of no answer, I wrote to my Lung Transplant coordinator and asked if she could get in touch with the doctor as I couldn't understand the results. My coordinator got back to me the same day saying she looked it over with my doctor and didn't see anything concerning. She said we may just monitor this more frequently like every 6 months. That same day, a nurse practitioner got back to me to say that the results are inconclusive as the lab that tests the pancreatic cyst fluid is now closed, permanently. I asked if they were gonna send the sample to another lab but I was told that is the only lab in the US that tests pancreatic fluid. I find this hard to believe. I guess no one can find out now if their cysts are mucinous or not not? He basically said I would not have needed surgery even it was mucinous as my cyst wasn't that big. I wasn't under the impression, originally, that the size of the cyst meant anything. He assured me they had many patients with musicnous cysts that were being watched over. He also said the yes we would repeat the scan in a month or two but that as long as that came back fine, I would not need scans more frequently than once a year. I was a little dissapointed by this outcome. I wanted to know if I had a mucinous cyst and if it was cause for concern. It seems the whole procedure was for nothing.

Friday, May 2, 2025

Ankle Update, Endoscopic Ultra Sound

 Ankle Update and Endoscopic Ultrasound

 

    So I had my ankle MRI two days ago. I got a pone call yesterday morning from the doctor wanting to go over the results. He said according to the MRI, I had a stress fracture and would need to wear a boot. I guess when I was walking my sister that one day, walking faster than usual, my ankle got injured. The doctor said it was most likely due to the fact that my bones are a bit weaker from decades of steroid use. So today, I went to see another doctor in the practice as my doctor wanted me to get a boot as soon as possible, and he was booked up. I received the boot but can't wear it for driving. So, the doctor showed me how to put it on, then I took it back off. I of course can't wear it showering either. The worst part is, I can't go to yoga for at least three weeks. In three weeks, I go back and they will do another X-ray and see if the area that looked funny is gone.  Otherwise, I may need another MRI, as MRI's are the only concrete way of seeing a stress fracture.

 


 

     I had my endoscopic ultra sound and biopsy done yesterday. This isn't my first ERCP. I've had several after my gallbladder was removed and I would get pancreatitis a lot. We got to the appointment 15 minutes early but they didn't' take me back inside until the time the procedure was set to start. They want you there an hour earlier so they can get you changed, go over your medical history-including your medicines, put in an IV, talk to anesthesia, etc. I woke up pretty well. I was really tired for the first two minutes but then I started coming to, and after say a broncoscoy, I'm usually starving and asking for food every two minutes even though after a bronch you can't eat or drink for tan hour. This time I could eat, and I was lucid and remembered everything I was told after I woke up, unlike the bronch. I had to have an IV infusion of an antibiotic after the procedure in the recovery area. They originally were going to give me levaquin but I get problems with my tendons sometimes so I requested a different antibiotic and received clyndomycin instead. The doctor finally came around about an hour after the procedure. She said that they were able to get some fluid out of the largest cyst. It didn't look to concerning to her. I was told earlier by the assistant that I as breathing very heavy and so they could only biopsy one cyst. I just wanted to make sure it was the one that had grown, and indeed, that's the one they got. Now to wait for results. 





 

Simulation

 Simulation   I recently went to Sloan to have my mold shaped for radiation.  I first was put through the Ct machine. I'm not sure if it...